New Delhi, May 5 : National Thalassemia Welfare Society organised the “25th International Thalassemia Day” here on Sunday.
The event was inaugurated by Commissioner disability Govt of Delhi T D Dhariyal. Mr Dhariyal, the chief guest, threw light on Thalassemia and RPWD Act 2016. Addressing the gathering, he said, “Thalassemia, sickle cell anemia and hemophilia have been included in the RPWD Act 2016. Now Thalassemics comes under 5 per cent reservations for higher education under disability.
However, they have no reservation in employment but now they cannot be refused or discriminated on health grounds. Thalassemics will be entitled to all the benefits under schemes made for disabled persons except reservations in jobs.”
National senior consultant and co-ordinator of blood cell at National Health Mission Vinita Srivastava, who was guest of honour, apprised the audience that national guidelines on management and prevention of Haemolobinopathies (Thalassemia & Sickle Cell anaemia) were published in 2016, for which policy draft is ready, which may be notified any time after the elections. Funds have been released to provide adequate treatment to thalassemics in each state.
The event also saw the support of corporate like TCS, Sodexo HCL, Soil, Walmart, Jaquar and RNA Technology and IP Attorneys who came together and talked about policies with regard to Thalassemia patients. The corporate reiterated that they are taking steps and changing policies recruiting Thalassemia patients.
General Secretary of National Thalassemia Welfare Society J S Arora thanked Ms Srivastava for taking initiatives to provide adequate treatment specially recently in Punjab & Karnataka, but unfortunately in most states still the condition is grim specially in Haryana, Delhi, UP & Bihar. Medicines availability is inadequate and irregular. (UNI)